A proclamation: Congenital Disorders of Glycosylation Awareness Day [May 2, 2016]

BY THE GOVERNOR OF THE STATE OF GEORGIA

A PROCLAMATION
CONGENITAL DISORDERS OF GLYCOSYLATION AWARENESS DAY

WHEREAS:

Congenital Disorders of Glycosylation (COG) are a group of rare metabolic disorders that affect normal organ development and the neurological system. Children, adolescents, and adults afflicted by COG may be impaired with significant physical and developmental disabilities; and

WHEREAS:

COG is severely under-diagnosed or misdiagnosed in a number of patients . Currently there are about 1,000 cases of COG reported in the U.S.; and

WHEREAS:

Early diagnosis of COG is important to ensure effective management of clinical complications, genetic counseling, treatment, and therapeutic remedies; and

WHEREAS:

Increased awareness about the existence of COG will lead to more timely diagnoses for afflicted individuals and more effective medical care for those diagnosed; now

THEREFORE:

I, NATHAN DEAL, Governor of the State of Georgia, do hereby proclaim May 16, 2016 as Congenital Disorders of Glycosylation Awareness Day in Georgia.

In witness thereof, I have hereunto set my hand and caused the Seal of the Executive Department to be affixed this 2nd day of May in the year of our Lord two thousand sixteen.

GOVERNOR
ATTEST
~AP.#t
CHIEF OF STAFF

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