BY THE GOVERNOR OF THE STATE OF GEORGIA
A PROCLAMATION
EHLERS-DANLOS SYNDROME AWARENESS MONTH
WHEREAS:
Ehlers-Danlos Syndrome (EDS) is a group of genetic disorders involving mutations in connective tissue characterized by looseness, instability, and dislocations of the joints, fragile and often hyperclastic skin that bruises, scars, and tears easily, unpredictable arterial and organ rupture, excessive internal bleeding, shock, stroke, and premature death; and
WHEREAS:
It is estimated that the prevalence of all six types of EDS is one in 5,000 births worldwide; and
WHEREAS:
Currently there is neither routine screening nor a cure for Ehlers-Danlos Syndrome. The disorder is frequently misdiagnosed resulting in greater discomfort and disability for patients. As such, individuals must take the initiative to seek a diagnosis from a knowledgeable health care provider; and
WHEREAS:
It is imperative that we increase genetic testing and research for EhlersDanlos Syndrome so those suffering can have a better quality of life. By encouraging further studies of this disorder, new understanding, interventions, and improved treatments can be developed; now
THEREFORE: I, NATHAN DEAL, Governor of the State of Georgia, do hereby proclaim May 201 5 as EHLERS-DANLOS SYNDROME AWARENESS MONTH in Georgia.
In witness thereof, I have hereunto set my hand and caused the Seal of the Executive Department to be affixed this 30th day of April in the year of our Lord two thousand fifteen.
ATTEST
GOVERNOR
CHIEF OF STAFF